You ever have one of those days that have been so all over
the map that you are almost at a loss for words? Yeah, us too. Today is one of
those days. Today was crazy, filled with incredible joy, blessings, and
miracles from the Miracle Maker, but also sadness, tears and pain. We celebrate
and rejoice the incredible hand of God in Mayla's progress (edima/swelling has
gone down, she has been peeing, she is alert and interacting), the safe arrival
of Keri's sister Christa to Zürich, an always exciting trip to the Gemeinde to
take care of residence permits, coffee with incredible friends in Christ, and
being able to hold our beloved daughter once more.
We wouldn't be honest with you though, if we didn't share
our pains and sorrows too. This morning,we found Mayla had made great progress.
She is no longer related to the Michelin Man and has been cut from the cast of
the Ghostbusters remake. Fluids are being drained, she was off the CPAP, awake,
we were both able to hold her, and play with her, Christa was able to meet
her... God's blessings flowed strongly; in other words, giving God the glory
was easy.
By evening, things were not soo pleasurable. While Mayla
didn't take a turn for the worse, a significant struggle was identified. Now
3-1/2 days post-op and almost all the swelling having gone down, we were
anticipating rapid progress. What we learned is Mayla is struggling to breath
on her own. She is on-and-off the CPAP but breathing is slow and oxygenation is
low. As the night wore on, breathing and oxygen levels became more of a concern
and when alarms began sounding, nurses started running and Mayla was typically
awakened from her sleep. Mayla also continues to struggle with feeding from a
bottle. Some time later we were asked to leave as a new patient was coming to
the ICU from surgery. We took this opportunity to catch a dinner break, then
come back for some time with a cherished brother in Christ. After that, Keri
and I went back to say good-night and pray over our beloved and we were denied.
There was another emergency in the ICU, not Mayla, and so we could neither kiss
her nor say good-night. This added to the struggles of an already tough night
for us in the ICU, and of course weighs further on the emotions of life in ICU.
Adding to this, Keri has been journaling since the beginning, and though I've
been writing the updates, I've only just begun journaling on our experience. As
you can probably imagine, journaling can be very healing, but wading through
the muddy waters of pain and sorrow is never easy.
Through all of this though, we continue to be reminded of
God's love and faithfulness, even during the most painful times or memories,
thickest tears, and greatest feelings of confusion. How? Simple. He is faithful.
He gives us only what we can be bear, and no more. He uses His people,
world-wide, to strengthen and encourage via SMS's at just the right time,
friends dropping in to talk and pray, hugs, emails, Facebook messages, etc.
While it's easy to praise and glorify when things are awesome, the true test of
a saint is what you do when it's not so easy; lip service is one thing... Our
test comes when we want to fill the desires of our heart with the joys of our
daughter, and we are denied. Our test comes when we learn our beloved daughter
is struggling to breath on her own. Our test comes when we want to pray over
our daughter and the enemy fights against us.
Our joy comes from the knowledge that He IS in control. Our
faith comes from the evidence of His hand at work in our lives, past and
present. Our hope is built on nothing less than Jesus blood and righteousness;
and there is nothing else in the world we want our hope built on. My shoulders
are not big enough, Keri is not tough enough, and though Mayla is a monster
compared to other 11 day olds, she just can't. We rejoice in the answered
prayers, peeing, edima subsiding, Mayla awakening from her sleep, meds being
removed, and we lift up further prayers for Mayla's breathing, further fluid
flushing, and increased strengthening. Mayla is a beautiful daughter of the
Almighty, and He IS being glorified in her healing.
I was reminded tonight of the guy blind from birth found in
John 9. When the disciples questioned whose faut it was, Jesus' response was
that it was no single persons fault, rather, it was in order that the Lord be
glorified. I will be so bold as to say, Mayla is a modern day interpretation of
this blind guy. She did nothing and her heart defect is no result of mine or
Keri's sin. She was knit the way she is, for His glory, and He will complete
the work begun, in His time, to His glory. The requested prayers are simple,
may the God of all, breath life into the lungs of Mayla Grace, that by His
grace and healing may she breath on her own. And when this happens, may each of
you turn and acknowledge Him. May He also touch each and every person, big and
small, within the ICU.
So much for loss of words huh... I really am trying to be
short; but I'm HUGE!
Welcome back!!!
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Inexpressible joy...
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There is definitely a front-runner for Aunt of the Year...
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