In the big picture not much. However, after three weeks one
more day seems almost like another year. It’s almost hard to believe that
Thursday will be three weeks since Mayla’s birthday. This has been one heck of
a journey, and while I can’t speak for Keri, I can say I’m exhausted and need a
holiday!
We were so hoping today would be the day we would be going
home, unfortunately Mayla has a weight issue (not enough of it and seems to
have been losing a bit of it) and they would like to keep an extra eye on her
overnight. In addition, they FINALLY looked at her ECG and determined she is
all good. The next step is to remove one of our many crutches and keep watch
for 24 hours before sending her home. One of those crutches being all the
sensors and monitors that keep an eye on our little girl. They do this as much
for parental adjustment as anything else. So, assuming she has not lost more
weight, all signs seem to be pointing to a trip to Au sometime Thursday.
However, earlier this week when we were just waiting for the ECG to say she is
okay and we can go, we were instructed to “be flexible”, so we remain like
Gumby (if you don’t know, google it).
This is really pretty remarkable to me given she had
open-heart surgery not quite two weeks ago and after a week and a half she was
pretty much good to go. Maybe that is a “normal” recovery period, but we keep
hearing how fast she has recovered and we are giving all credit to the Maker of
heaven and earth. He has had us on quite a whirlwind (Föhn to our Swiss
brethren and sisthren, hahahahaha) journey over the last few weeks. We know it
isn’t finished yet but I can not help but marvel at how good He has been; He
has cared for us, provided for us, strengthened us particularly in our moments
of weakness, humbled us, healed our daughter, given hope and shown His light in
the midst of chaos and seeming darkness. As said, it’s not over yet and the
waters ahead are vast with a significant fog making our visibility slim to
none. We do however have the Great Lighthouse leading us into port, and so long
as we maintain our heading, “Hakuna Matata”, no worries.
While our hope of going home did not come, we enjoyed and
celebrated some wonderful blessings with Mayla today. Of course she was taken
off the monitors and we could finally remove all the sensors from her body, we
were able to use hospital diapers an extra day instead of ones we had to pay
for, she no longer needs magnesium supplements, we had another ‘holiday’ from
doing Mayla’s laundry, I wheeled her through the halls of the hospital in a
stroller like it was a NASCAR race (always turning left, only going fast when
Keri wasn’t around), she has been nursing soo well and hasn’t needed an extra
“boost” to get her started, she’s been getting even stronger as illustrated by
the fact it takes a lot longer for hiccups which are Richter scaled about a 10
to bother her, she interacts more often with us, and many others.
We have been so richly blessed to see her progress as well
as how He has sustained us over these weeks, how he has rallied people around
the world to pray for Mayla, and how He rallied our church family to lift us up
and go above and beyond to be there for us. We are eternally grateful and so
incredibly thankful that words do not describe nor do they do any justice.
Each night as we rest in our room, we have worship music
constantly playing on the iPod, all night long in fact. A song I really enjoy
was just on with lyrics that speak volumes to me, “Who can grasp your infinite
wisdom, who can fathom the depths of your love… I stand in awe of you!” We
don’t know or understand why: why Mayla, why us, why the heart, why not the
job… However, we are unable to grasp His wisdom so it probably wouldn’t make
sense anyway. We can, however, see some amazing things He has done over the
last few weeks, blessings for us as well as others, and so we stand in awe of
Him. And while we may not see the path clearly, we are not concerned because we
are also unable to fathom the depth of His love. He has brought us through very
difficult times, and we know he will lead us through the rest; all other ground
is sinking sand.
Do not think it strange concerning the fiery trial which is
to try you, . . . but rejoice . . . when His glory is revealed. —1 Peter
4:12-13
For the record, NOT our stroller...
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Love seeing a monitor with nothing happening.
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