Wednesday, January 29, 2014

Never a dull moment with the Ellis'

As I sat in the big wooden, abundantly used rocking chair, tears rolled down my cheeks as I tried to sing to Mayla just now before nap time. Today was one of those days as a parent, you don't want to experience.

Mayla had an eval with an early on developmental specialist. We have been concerned about her speech, or lack there of for months, and we finally got together with the right person and was able to have an appointment here in the comfort of our home. Mayla roamed about playing with one toy after another while Erin the psychologist and I spoke about Mayla's birth, health and the way she started life. All the while, Mayla continued on the move, her usual quiet self.

Mayla never went through the cooing/gagaga/googoo stage of life, nor has she yet uttered dada and mama hasn't been spoken more than 10 times in her almost 17 months of life. No babbling, no jabbering! This coupled with her previous heart condition, lack of oxygen in the begging days of her life, inability to drink without coughing or eat without gagging definitely rose some red flags for Erin.

After an hour of her interacting, talking and questioning myself and Mayla, Erin came to the conclusion that Mayla was at the stage of a 7 month old. It took every ounce of my being not to lose it at that moment! There's something different about 'thinking' something was wrong with Mayla and being told mater of fact something is wrong. Even as I type, my stomach hurts replaying Erin's words in my head!

What's next, what does this look like for us, i'm not really sure. I do know that we will be in contact with our doctor as Mayla needs to have a diagnostic feeding eval done as well. Mayla gags and chokes often when eating and almost every time when drinking, something that makes meal times one of the most stressful parts of my day. Today she gagged, choked and then puked during lunch, i'm sure if she keeps this up it will be hard to find anyone willing to babysit her during meal times:)

Will and I pondered for a year now, wondering what God had in store for bringing us back here..and maybe it's now clear, being in a place where they speak the same language and can help get us to the place Mayla needs to be! I see a lot of appointments in the future, but I also see Jesus at those appointments with us. I felt him rocking with me in the rocking chair just a bit ago, Him holding me as I held Mayla.

She is an amazing, smart little girl, an absolute bundle of joy (even Erin said so:) and i'm blessed that I get to be her mom and help her along in this journey and I look forward to sharing it with you!!

5 comments:

  1. Will and Keri- There is an amazing amount of help in W. Mich. The medical community is loaded with specialists in many many areas of medicine. BUT they will be even more expert and empowered as your army of family and friends call on The Great Physician to guide you to the right drs. and guide the thinking and work of the various medical staff you will be dealing with. Blessings on you all.

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  2. Will, Keri, and Mayla, Nancy and I will continue to pray for all of you, may God bless you.
    Dave and Nancy Ryskamp

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  3. Keri, just saw this. Love that you are being open & sharing. Parenting is not easy, and this had to be very hard for you to hear. Little Mayla is such a sweetie! So sorry that you're going through this. I feel like kiddos are all so different & on their own little agendas. Maybe a little extra help in the beginning will work wonders right away! Praying for you guys. And here if you need anything :) so glad to know you!

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  4. Our hearts and wishes are with you! Greetings from Switzerland,
    Cara, Michael & Isabella

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  5. Will and Keri,
    I am an old friend of Mom, Jean's. My prayers are with and for you all. I love that you trust in the Lord and know you are right where God wants you to be. He will never fail you and I know you TRUST in HIM. Mayla is so blest to have parents like you too!!!!
    Heavenly Father please bless this special trusting family, keep them on the right path to find help for little Mayla. She is yours Dear FATHER and you have entrusted her to these loving wonderful parents. Bless THEM ALL!!!!
    Nancy Prominski

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