Tuesday, March 24, 2015

Genetic testing results are in....

(Wrote majority of this Monday night)
We have been eating a LOT of ice cream lately at our house. Our freezer is constantly stocked with it and if we for some reason run out, Walgreens is close by. Ice cream has become late night therapy, right, wrong or otherwise, it's been happening and it's been yummy! I'm eating some now, not just any ice cream though, stracciatella gelato. Tonight, after everything that has happened, this splurge was well worth it.

I was talking with my uncle today and he reminded me of the verse "Though He slay me, I will hope in Him. Nevertheless I will argue my ways before Him." Job 13:15 You ever watch one of those movies where someone is getting the snot beat out of them and they just lay there, surrendering but the hits keep coming....that's how I feel lately. I'm throwing up the white flag, waving it frantically back and forth, but the hits keep coming.

Fun started with Mayla on Thursday as she completely poohed through her outfit in the waiting room of the ENT's office, requiring a complete outfit change in the car, this was the beginning of her going down hill and a long day/night! Friday morning my heart was beating fast and a surge of emotions flooded me as I had reason to believe that we had Lost baby Nani which sent me in for an emergency heart beat check.  Turned out to be a false alarm and the heart beat was heard loud and clear. While there I also FINALLY got the genetic testing results back and out of the four that were scanned (it was by no means a full comprehensive test), they found NO abnormalities. PRAISE GOD!!!!! This was such a relief and answer to prayer! And yes, they did tell us the sex of the baby, but that news will have to wait a few more days;o) Saturday Mayla was on the upswing and I decided an outing to the local grocery store, Meijer, might bring some joy to our day, BOY WAS I WRONG!!! In line she had a MASSIVE diarrhea blow OUT, UP the back, OUT the pull up and down the seat of the cart onto none other than the toilet paper in the cart (and yes I tried to clean it as best as I could but this is ONE reason it's VERY important to always use the courtesy purel wipes they offer by the shopping carts..EEK). I was annoyed, stressed, frustrated and beyond broke by this point. Changing her in the car as she cried out to to me left me forgetting that she belongs to the Lord, and one angry mamma bear came raging out. I cried all the way home, begging God for forgiveness as I had been so angry with Him and BEGGING Him for a break from the beating! His answer was different than I wanted. Mayla started throwing up at 2:30 am Sunday morning and after 17 gut wrenching times of throwing a bucket in front of her face or sprinting to the bathroom with her, it finally stopped while we were at the Children's hospital in the early afternoon. She was limp, lifeless and laid motionless on the couch before we took her in, we had been kicking Satan out of our house, out of Mayla's room and for him to leave her with no answer. Will and I begged God to spare her and instead put it on one of us. As we were discussing this, we realized Mayla was our weakness, and Satan was trying to go through her to get to us. Seeing the look in her eyes every time she was throwing up was another blow to my side....Mayla showed some form of life today and the optimism returned, only to once more be beat down as the diarrhea increased late this afternoon and the fever returned just before putting her to bed! I sit here in tears, worn thin emotionally and spiritually drained. Those of you who feel helpless by only offering praying, I honestly feel like it's your prayers that are upholding us, and helping me get out of bed each morning, so thank you! The cards, texts, email's, messages, scriptures, and meals have meant more to us then you will ever know! It's hard to belief that this journey is only going to get tougher as the weeks go on.

In talking to many of you I have mentioned how I have a breaking point and some days I don't reach that point (I like those days), other days i'm broken from the moment I turn the light on to start the day. This song is close to my heart and literally on my mind daily...

Jermey Riddle. Sweetly Broken

To the cross I look, to the cross I cling
Of its suffering I do drink
Of its work I do sing

For on it my Savior both bruised and crushed
Showed that God is love
And God is just

Chorus:
At the cross You beckon me
You draw me gently to my knees, and I am
Lost for words, so lost in love,
I'm sweetly broken, wholly surrendered

What a priceless gift, undeserved life
Have I been given
Through Christ crucified

You've called me out of death
You've called me into life
And I was under Your wrath
Now through the cross I'm reconciled

Chorus:
In awe of the cross I must confess
How wondrous Your redeeming love and
How great is Your faithfulness

I've been drawn to my knees, and sweetly broken, but I cling to the cross and know that God is love and believe in his faithfulness. It could be easy to run from him, feeling let down, alone and lost, but I personally believe he wants all this to be a part of our story for a reason, He has NOT left me, He will NEVER leave me and just because life is hard doesn't mean He doesn't love me. Despite the pain, the trials, the sufferings, He has done more for me than I could ever comprehend, and for that I will never leave His side.
Silver lining of Mayla being sick, the snuggles

She's been so cold lately, we put her lion costume on (per her request) and snuggled up. 

YUMMY Gelato...






Monday, March 9, 2015

The battle....

(Started this blog friday night) 
I feel like writing to express and share so much, however when I just sat down on our comfy red couch to type, I just stared at this screen, my brain was working, sending signals but it was as if my hands were not able to respond, and here I sit in the darkness, feeling the bitter chill around me, not knowing where to start or what to say, but just sitting.......

That part was friday night, I was lost, frustrated, and more in the mood to scream then write, here we are Monday night and part of me still feels that same way. I knew this road would be tough, some times I feel I can plan for it, other times i'm caught off guard as if another arrow has been thrown at my chest, friday was one of those days! 

Friday my phone rang mid morning and seeing 'GYNO' pop across the screen actually left me nervous and smiling at the same time. It had been 8 days since I had the genetic blood test done, but to me, the difference from having it to when that phone call arrived, felt like weeks. With anticipation and apprehension in my voice I answered. I was a bit shocked to hear the same apprehension in the nurses voice. She started to apologize and I knew it was not good. I looked for a pen and headed for the nearest seat, figuring I would want to be seated for this. She proceeded with telling me that something went wrong at the lab and I needed to come back again for more blood work. WHAT?? WHY ME??? The first time was no fun, the waiting to hear was no fun, and now I was needing to go through it all again?! So, today was appointment number two for the blood work and I was only there 40 minutes for this process (GRRR)....The original nurse who called me back was a bit confused how to process some things and went for help. She THANKFULLY brought back the girl that originally took my blood, was I happy to see her. I am a nurses' WORST blood drawing nightmare with veins that are as thin as string, and tend to jump (yup mine can do that, talent I know). What you need to know about me at this point in time is that over the years, I have come to despise having blood drawn as it usually ends in both arms being used multiple times, moving the needle around and more pricks than should be allowed, followed by pain and bruising that lasts for days......and last time this girl that was now standing in front of me nailed it, so I was a bit relieved. She explained a few things to the other girl, gave me a nice frown face for having to be there again, and told me an interesting fact. I was her first 'ginny pig' when I originally had this test done a week and a half ago, however after me, she saw 4 more ladies that day for the same blood draw test. She then informed me that I was the only one that had come back in. I'm sure you can tell how much this comforted me!! She started the blood draw and I was relieved to see it pooling in the long tube, she filled the first one, then grabbed the second one, I continued to watch and was highly saddened when my vein just stopped 'pushing' out blood. It was like that vein was empty. She pulled the tube out, looked at it, then put it back in, waiting, watching, nothing was happening. She pulled it out again, looked at it and put it back in, this time moving the needle a little (yes, one of my least favorite moments) and still NOTHING! She pulled it out and said, 'this SHOULD be enough'. Instantly I was playing the next phone call over in my head that will probably be coming in about 9 days and I can picture it going a little something like this, 'Keri, it's Nancy from Dr. Lally's office, i'm really sorry but there was a problem with your lab work, there was not enough blood for them to do run your test and we need to have you back again'! HA! I may sound cynical here, but I am actually typing this with a smile on my face!!! Just trying to prepare...

I've been having up and down moments since Friday and a lot has taken place in my head. I feel like my left shoulder has been weighted down with this stupid little red dude, while my right shoulder has been lifted high with an angelic white man sitting on it. They have been battling it out,  all the while I feel like i'm watching a tennis match pinging back and forth. Recently I stumbled upon a verse that says, "Be happy in your hope. Do not give up when trouble comes. Do not let anything stop you from praying." Romans 12:12. This verse is powerful for the situation we find ourselves in right now, but also leads me to another one. "Always be joyful. Never stop praying. Be thankful in all circumstances, for this is God's will for you who belong to Christ Jesus." 1 Thessalonians 5:16-18 NLT. These verses stop me DEAD in my tracks. The words ALWAYS, NEVER, and ALL are extremely powerful words. It does not say in either verse, if it's too hard you can quit, if it's too hard it means I don't love you, be joyful only when things are going your way and you're happy! NADA, not in there! So it begs the question, what situation in your life aren't you thankful for that maybe you should try being thankful for?? These are tough bible verses, I will be the first to admit that. I don't want to be joyful when I think of the possibility of only holding a dead baby and not a live one in my arms, I don't want to give thanks when I think of Mayla not being able to help me feed baby Nani a bottle, or change her diaper or witness her being an older sister to baby Nani. These thoughts hurt me at my core and cause me to weep. But some how through the tears, through the pain through the questions, I am thankful and I will be joyful. 'Trust in the Lord with all your heart; do not depend on your own understanding.' Proverbs 3:5 NLT. Through the pregnancy hormones, the growing belly, the questions, we will continue to submit and praise and stand back in awe of what He will do!

This thursday I will be approaching the 16 week mark, still a couple more weeks to go till we have another ultrasound, and it feels like forever far away as i'm longing to see the life growing inside me and fall more in love. The flutters are being felt and the 'normal pants' are starting to get really uncomfortable, all signs of growing life. At times I love the growing tummy, and majority of other times I have a hard time even looking in a mirror or putting on 'normal clothes. This is a huge difference from being pregnant with Mayla where I wanted the world to see I was pregnant and even jumped the gun on wearing maternity shirts. These things are all part of the battle that rages every day inside. 

Already in this short (but long) 6 week journey we have been given so many gifts and we thank you all for being a part of this story. Your cards, texts, emails, messages, dinners, hugs, thoughts and prayers have meant more to us than we will ever be able to convey. You have opened your arms, your hearts and even some of you, your homes to comfort us, not a single thing has gone un-noticed and some days I feel like it's you all who raise us up and help us to continue on. We appreciate you!